FSMA á Íslandi er nú skráð í Tread-NMD network, sem eru samtök sem stuðla að skilviku upplýsingaflæði og vænlegustu meðferðum sem fánlegar eru.
“TREAT-NMD is a network for the neuromuscular field that provides an infrastructure to ensure that the most promising new therapies reach patients as quickly as possible. Since its launch in January 2007 the network’s focus has been on the development of tools that industry, clinicians and scientists need to bring novel therapeutic approaches through preclinical development and into the clinic, and on establishing best-practice care for neuromuscular patients worldwide.” http://www.treat-nmd.eu/